NATIONAL SUPPORT RESOURCES

Click here for State suppors resources

SUDDEN INFANT DEATH / STILLBITH / MISCARRIAGE

AGAST ( Alliance of Grandparents, A Support in Tragedy)

P.O. Box 17281
Phoenix , AZ 85011
888-774-7437
www.agast.org

AGAST provides grief support to grandparents of SIDS victims via trained peer contacts (grandparents who have survived the experience) as well as support groups and outreach. The internet site includes memorials, information, links to discussion groups, support groups and grief support resources.

11115 Dull Robinson Rd
VanWert , OH 45891
419-238-1091
www.alivealone.org

Alive and Alone provides information and support to parents who become childless after the death of one or more of their children.

4324 Berrywick Terrace
St. Louis , MO 63128
314-487-7582

One-on-one peer contact for bereaved parents who have experienced the loss of an infant through miscarriage, stillbirth or neonatal death. Support, encouragement and counseling on the phone by trained volunteer counselors.

Association of SIDS and Infant Mortality Programs

630 West Fayette St - Room 5-684
Baltimore , MD 21201
410-706-5062
www.asip1.org

This is a membership organization for professionals who provide services relevant to SIDS and other infant deaths. Annual conference.

P.O. Box 95
Park Forest , IL 60400
708-748-9184
www.bereavedparentsusa.org

This organization provides help and support to families who lose children of any age and work with grief at any stage. Healed parents who have survived the experience serve as contacts and support group facilitation.

7230 Maple Street
Omaha , NE 68134
402-553-1200
fax 402-553-0507
www.centering.org

Extensive catalogue of grief resources for children and adults including book descriptions and several indexes.

Hackensack University Medical Center
30 Prospect Avenue
Hackensack , NJ 07601
201-996-5111
888-8CJ-SIDS
www.cjsids.com

The CJ Foundation is a nationwide voluntary health organization dedicated to recognizing special needs of the SIDS community through funding SIDS research and support services. They fund national and local SIDS research projects as well as family service and public awareness programs.

P.O. Box 91377
Anchorage , AK 99509
907-222-5321
www.climb-support.org

CLIMB provides support for parents who have lost one or more children from a multiple birth.

7036 Hwy 80 South
Burnsville , NC 28714
800-970-4220
www.compassionbooks.com

Over 400 resources to help children and adults through grief and bereavement. Informative e-newsletter.

1314 Bedford Ave. Ste 210
Baltimore , MD 21208
800-221-7437
www.sidsalliance.org

First Candle (formerly known as The National SIDS Alliance, Inc.) provides bereavement support to families who experience an infant death, risk reduction education to professionals and support for medical research designed to clarify and eventually eliminate SIDS. First Candle is a national, non-profit health organization uniting individuals, families and professionals interested in finding ways to reduce SIDS and infant death.

1416 Green Run Lane
Reston , VA 20190
www.inlovingmemory.org

In Loving Memory provides on-line comfort and grief support to childless parents including articles, resources, commemorative activities and oconferences.

2070 Chain Bridge Road Suite 450
Vienna , VA 22182
703-821-8955 x249
www.sidscenter.org

This center provides SIDS literature for various audiences and a national newsletter. They operate a “Back to Sleep” hotline.

P.O. Box 8738
Reno , NV
702-826-7332

Support network for those experiencing pregnancy loss or child death. Written correspondence with others and Quarterly newsletter.

National Office
1111 Tower Road
Schaumburg , IL 60173
708-310-1880
www.rainbows.org

Non-profit international organization offering grief support services and training for establishing peer support groups in schools, churches, hospitals or social agencies.

1910 South Avenue
La Crosse , WI 54601
800-362-9567 ext 54747

International perinatal bereavement program offering RTS (Resolve Through Sharing) Counselor training courses, sensitivity seminars and support materials.

Brazosport Memorial Hospital
100 Medical Drive
Lake Jackson , TX 77566
800-245-7437
www.swsids.hicd.com

The Southwest SIDS Research Institute maintains a national database of SIDS information and infantile apnea episodes. They perform studies on how SIDS affects families. The Institute also provides consultation and technical assistance to organizations developing infant mortality initiatives and advocates for federal initiatives regarding infant mortality preventio.

P.O. Box 520
Ledyard , CT 06339
www.sids-network.org

Full service website providing support for those touched by SIDS as well as information for public and professionals. Peer counseling, support groups, counseling and referrals. Literature, educational materials and public service announcements are available.

P.O. Box 5333
Peoria , AZ 85385
623-979-1000
www.missfoundation.org

The MISS Foundation is a non-profit volunteer-based organization dedicated to the emergency and ongoing support of grieving families who've lost and infant or young child to any cause. The organization works to promote public awareness to decrease infant mortality and to educate on grief surrounding death. They run support groups around the country, advocate for legislation at the state level and provide a wide variety of memorials and information exchange for families.

ADDITIONAL ON-LINE RESOURCES

www.nih.gov/medlineplus/suddeninfantdeathsyndrome.html
MEDLINEplus is a service of the U.S. National Library of Medecine and National Institutes of Health. Excellent overview of current SIDS research and education initiatives.

www.cdc.gov/nccdphp/drh/surv_sids.htm
National Center for Chronic Disease Prevention and Health Promotion side which provides information and statistics on SIDS including data analysis and death scene investigation guidelines.

www.aap.org/policy/re9946.html
Latest recommendations regarding SIDS from the American Academy of Pediatricians.

www.nichd.nih.gov/sids/
Information and materials from the “Back to Sleep” Campaign by the National Institute of Child Health and Human Development.

www.rainbowmaker.org
Online support and comfort to bereaved parents.

www.angels4ever.com
Grief support for parents trying to cope with neonatal loss, SIDS, miscarriage or stillbirth.

www.webhealing.com
Tom Golden's website to browse or chat where people discuss various paths to healing grief.

www.silentgrief.com
Articles and chat rooms regarding grief surrounding the loss of a child.

sidsnet@home.ease.lsoft.com
E-mail list serve where parents share and correspond with each other.

sidslist@onelist.com
E-mail list serve where parents share and correspond with each other.