NATIONAL SUPPORT RESOURCES
SUDDEN INFANT DEATH / STILLBITH / MISCARRIAGE
First Candle ( National SIDS Alliance)
1314 Bedford Ave. Ste 210
Baltimore , MD 21208
800-221-7437
First Candle (formerly known as The National SIDS Alliance, Inc.) provides bereavement support to families who experience an infant death, risk reduction education to professionals and support for medical research designed to clarify and eventually eliminate SIDS. First Candle is a national, non-profit health organization uniting individuals, families and professionals interested in finding ways to reduce SIDS and infant death.
CJ Foundation for SIDS
Hackensack University Medical Center
30 Prospect Avenue
Hackensack , NJ 07601
201-996-5111
888-8CJ-SIDS
The CJ Foundation is a nationwide voluntary health organization dedicated to recognizing special needs of the SIDS community through funding SIDS research and support services. They fund national and local SIDS research projects as well as family service and public awareness programs.
Association of SIDS and Infant Mortality Programs
630 West Fayette St - Room 5-684
Baltimore , MD 21201
410-706-5062
This is a membership organization for professionals who provide services relevant to SIDS and other infant deaths. Annual conference.
National SIDS Resource Center
2070 Chain Bridge Road Suite 450
Vienna , VA 22182
703-821-8955 x249
This center provides SIDS literature for various audiences and a national newsletter. They operate a “Back to Sleep” hotline.
Southwest SIDS Research Institute
Brazosport Memorial Hospital
100 Medical Drive
Lake Jackson , TX 77566
800-245-7437
The Southwest SIDS Research Institute maintains a national database of SIDS information and infantile apnea episodes. They perform studies on how SIDS affects families. The Institute also provides consultation and technical assistance to organizations developing infant mortality initiatives and advocates for federal initiatives regarding infant mortality preventio.
Sudden Infant Death Syndrome Network, Inc.
P.O. Box 520
Ledyard , CT 06339
Full service website providing support for those touched by SIDS as well as information for public and professionals. Peer counseling, support groups, counseling and referrals. Literature, educational materials and public service announcements are available.
Compassionate Friends -- See STATEWIDE RESOURCES
AGAST ( Alliance of Grandparents, A Support in Tragedy)
P.O. Box 17281
Phoenix , AZ 85011
888-774-7437
AGAST provides grief support to grandparents of SIDS victims via trained peer contacts (grandparents who have survived the experience) as well as support groups and outreach. The internet site includes memorials, information, links to discussion groups, support groups and grief support resources.
Alive and Alone
11115 Dull Robinson Rd
VanWert , OH 45891
419-238-1091
Alive and Alone provides information and support to parents who become childless after the death of one or more of their children.
Bereaved Parents of the USA
P.O. Box 95
Park Forest , IL 60400
708-748-9184
This organization provides help and support to families who lose children of any age and work with grief at any stage. Healed parents who have survived the experience serve as contacts and support group facilitation.
CLIMB (Center for Loss in Multiple Birth)
P.O. Box 91377
Anchorage , AK 99509
907-222-5321
CLIMB provides support for parents who have lost one or more children from a multiple birth.
In Loving Memory
1416 Green Run Lane
Reston , VA 20190
In Loving Memory provides on-line comfort and grief support to childless parents including articles, resources, commemorative activities and oconferences.
The MISS Foundation
P.O. Box 5333
Peoria , AZ 85385
623-979-1000
The MISS Foundation is a non-profit volunteer-based organization dedicated to the emergency and ongoing support of grieving families who’ve lost and infant or young child to any cause. The organization works to promote public awareness to decrease infant mortality and to educate on grief surrounding death. They run support groups around the country, advocate for legislation at the state level and provide a wide variety of memorials and information exchange for families.
Centering Corporation
7230 Maple Street
Omaha , NE 68134
402-553-1200
fax 402-553-0507
Extensive catalogue of grief resources for children and adults including book descriptions and several indexes.
Compassion Books, Inc.
7036 Hwy 80 South
Burnsville , NC 28714
800-970-4220
Over 400 resources to help children and adults through grief and bereavement. Informative e-newsletter.
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RAINBOWS
National Office
1111 Tower Road
Schaumburg , IL 60173
708-310-1880
Non-profit international organization offering grief support services and training for establishing peer support groups in schools, churches, hospitals or social agencies.
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RTS Bereavement Services
1910 South Avenue
La Crosse , WI 54601
800-362-9567 ext 54747
International perinatal bereavement program offering RTS (Resolve Through Sharing) Counselor training courses, sensitivity seminars and support materials.
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Pen Parents
P.O. Box 8738
Reno , NV
702-826-7332
Support network for those experiencing pregnancy loss or child death. Written correspondence with others and Quarterly newsletter.
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AMEND
4324 Berrywick Terrace
St. Louis , MO 63128
314-487-7582
One-on-one peer contact for bereaved parents who have experienced the loss of an infant through miscarriage, stillbirth or neonatal death. Support, encouragement and counseling on the phone by trained volunteer counselors.
ADDITIONAL ON-LINE RESOURCES
www.nih.gov/medlineplus/suddeninfantdeathsyndrome.html
MEDLINEplus is a service of the U.S. National Library of Medecine and National Institutes of Health. Excellent overview of current SIDS research and education initiatives.
www.cdc.gov/nccdphp/drh/surv_sids.htm
National Center for Chronic Disease Prevention and Health Promotion side which provides information and statistics on SIDS including data analysis and death scene investigation guidelines.
www.aap.org/policy/re9946.html
Latest recommendations regarding SIDS from the American Academy of Pediatricians.
Information and materials from the “Back to Sleep” Campaign by the National Institute of Child Health and Human Development.
Online support and comfort to bereaved parents.
Grief support for parents trying to cope with neonatal loss, SIDS, miscarriage or stillbirth.
Tom Golden’s website to browse or chat where people discuss various paths to healing grief.
Articles and chat rooms regarding grief surrounding the loss of a child.
E-mail list serve where parents share and correspond with each other.
E-mail list serve where parents share and correspond with each other.
