Information About SIDS and OIDS
Alliance
of Grandparents Against SIDS Tragedy
AGAST provides grief support to grandparents of SIDS victims via trained
peer contacts (grandparents who have survived the experience) as well
as support groups and outreach. The internet site includes memorials,
information, links to discussion groups, support groups and grief support
resources.
American
SIDS Institute
The American SIDS Institute is dedicated to the prevention of SIDS and
the promotion of infant health through research, clinical services, education
and family support. They provide information on SIDS research, perform
sleep studies and do public education.
Association
of SIDS and Infant Mortality Programs
The Association of SIDS and Infant Mortality Programs (ASIP, formerly
ASPP, Association of SIDS Program Professionals) is an association of
health and human service providers committed to bereavement support and
risk reduction activities. ASIP promotes programs of counseling, education,
advocacy, and research to ensure a supportive community response for
those affected by infant and child death and to reduce the risk of death
for future children.
Back
to Sleep Campaign
This campaign is sponsored by the National Institute of Child Health
and Human Development, the Maternal and Child Health Bureau, the American
Academy of Pediatrics, the SIDS Alliance, and the Association of SIDS
and Infant Mortality Programs.
CJ
Foundation for SIDS
The CJ Foundation for Sudden Infant Death Syndrome is a nationwide voluntary
health organization dedicated to recognizing the special needs of the
SIDS community through funding SIDS research and support services. The
Foundation hopes to increase public awareness of SIDS and to contribute
to a future in which no parent is faced with the tragedy of losing a
loved one to SIDS.
March
of Dimes
he March of Dimes is a not-for-profit organization whose mission is to
improve the health of babies by preventing birth defects and infant mortality.
National Center for Cultural Competence www.sids-network.org
The National Center for Cultural Competence seeks to address issues related
to the divisions of race, ethnicity and culture through training, technical
assistance and consultation; networking, linkages and information exchange;
and knowledge and product development and dissemination.
National
Institute of Child Health and Human Development
The NICHD Administers a multidisciplinary program of research,
training, and public information, nationally and within its own facilities,
on reproductive biology and population issues; on prenatal development
as well as maternal, child and family health; and on medical rehabilitation.
National
SIDS Resource Center
The Center provides information
services and technical assistance to promote understanding of SIDS and
provide comfort to those affected by
SIDS through information sharing. Sponsored by the Maternal and Child
Health Bureau (MCHB), Health Resources and Services Administration, U.S.
Department of Health and Human Services, NSRC assists State MCHB-supported
projects.
National
SIDS and Infant Death Support Center Program
Working in harmony to enhance and strengthen community-based, family-centered
SIDS & infant death risk reduction and bereavement services throughout
the United States.
SIDS
Alliance First Candle
SIDS Alliance exists to promote
infant health and survival during the prenatal period through two
years of age. This
is done through advocacy, education and research. SIDS and Other Infant
Death bereavement services are a critical component of our mission.
SIDS
Network
Full service website providing support for those touched by SIDS and
information for public and professionals, peer counseling, support groups,
counseling and referrals. Literature, educational materials and public
service announcements are available.
