August E-zine

 

The Georgia SIDS Project E-Zine is an on-line educational update offered monthly by the Georgia Sudden Infant Death Information, Referral and Support Project, an affiliate of First Candle/SIDS Alliance. To comment on this issue, request additional information, refer families in need of support, make a donation or be added or removed from the list please contact us at gasids@mindspring.com or call 678-342-3360 or through Powerline at 1-800-822-2539.

This publication is made available through the generous donation of friends and supporters of our program.

 

Through the State Charitable Campaign Program state employees can select and donate to the Georgia SIDS Project. Help us support bereaved families, increase risk reduction education, make safe cribs available to low-income high-risk infants through your donations. Select Georgia SIDS Project - # 160000

 

Volume 2 - Issue Number 8, August 2006

1.       Georgia SIDS Project funding for risk reduction services no longer underwritten by Georgia DHR- Division of Public Health

2.       Abstracts from June 2006  International Stillbirth Conference Available

3.       Estimates of the cost and length of stay changes that can be attributed to one week increases in gestational age for premature infants

4.       Review of literature: Smoking in relationship to SIDS deaths

5.       Female resistance to hypoxia: does it explain the sex difference in mortality rates – new area of research?

6.       New research looks at understanding more about complicated grief and how it differs diagnostically from the normal grief process

7.       Legislation looks at initiatives to prevent premature births

8.       New  compendium includes links to electronic versions of publications such as fact sheets, brochures, booklets, posters, order forms, and electronic materials in CD/DVD/video format (including foreign-language materials).

9.       New web-site wins national award for curriculums and educational materials to prevent teen pregnancy and STDs

10.    New Self-Assessment Checklist for Personnel Providing Behavioral Health Services and Supports to Children, Youth and Their Families from National Center for Cultural Competency

11.    New document outlines Promoting Child Development from Birth in State Early Care and Education Initiatives in the US

12.    Article reviews Environmental "Riskscape" and Social Inequality with Implications for Explaining Maternal and Child Health Disparities

13.    Barriers to following the supine sleep recommendation among mothers at four centers for the WIC Program

14.    Stillbirth and bereavement: Guidelines for Stillbirth Investigation.

15.    Perinatal Loss: A Family Perspective

 

1.       The Georgia SIDS Project will no longer be receiving state funding to support our risk reduction training services for professionals from Georgia Division of Public Health for fiscal year 2007 (beginning 7/1/06). These services will continue, but organizations will be charged a fee for training or fees will need to be underwritten by private donations or other sources. Last year, as part of our contract Georgia SIDS was able to contact and provide training for 76 professional groups reaching 3115 individuals. We hope to continue our training for professionals in the most cost effective manner available. To learn more about our training in SIDS risk reduction and bereavement support, for information on available DECAL CEU training and nursing contact hours see our website or contact us directly. Also if you are a state employee, please consider supporting our continued efforts by selecting the Georgia SIDS Project as part of your charitable campaign donation.  Donations to support this work are more important than ever… We appreciate any support you may be able to offer.

 

2.       There are approximately 4.5 million stillbirth deaths worldwide each year and, until recently, there has been no nternational forum for research, data collection and/or prevention strategies dedicated to solving these tragic infant deaths.  While there have been advances in health care and improved health outcomes in many areas, the rates of stillbirth have not decreased and, in fact, in some regions the rates may be increasing. The 2006 International Stillbirth Conference was successfully held in collaboration with The 9th SIDS International Conference on June 1-4 in Yokohama, Japan. Abstracts are available from the meeting which review current research projects from around the world. Go to http://www.firstcandle.org/newsletter/august_06_newsletter_email/topstories/Stillbirth%20Abstracts.pdf

 

3.       Estimates of the cost and length of stay changes that can be attributed to one week increases in gestational age for premature infants by CS Phibbs and SK Schmitt, Early Human Dev 2006 Feb.  cphibbs@stanford.edu

The goal of this study was to estimate the potential savings, both in terms of costs and lengths of stay, of one-week increases in gestational age for premature infants. The purpose is to provide population-based data that can be used to assess the potential savings of interventions that delay premature delivery. Cohort data for all births in California in 1998-2000 that linked vital records data with those from hospital discharge abstracts, including those of neonatal transport were used. All infants with a gestational age between 24 - 37 weeks were included. There were 193,167 infants in the sample.  Hospital costs were estimated by adjusting charges by hospital-specific costs-to-charges ratios. Data were aggregated across transport into episodes of care. Mean and median potential savings were calculated for increasing gestational age, in one-week intervals. The 25th and 75th percentiles were used to estimate ranges. RESULTS: The results are presented in matrix format, for starting gestational ages of 24-34 weeks, with ending gestational ages of 25 to 37 weeks. Costs and lengths of stay decreased with gestational age from a median of $216,814 (92 days) at 24 weeks to $591 (2 days) at 37 weeks. The potential savings from delaying premature labor are quite large; the median savings for a 2 week increase in gestational age were between $28,870 and $64,021 for gestational ages below 33 weeks, with larger savings for longer delays in delivery. Delaying deliveries <29 weeks to term (37 weeks) resulted in savings of over $122,000 per case, with the savings being over $206,000 for deliveries <26 weeks. These results provide population-based data that can be applied to clinical trials data to assess the impacts on costs and lengths of stay of interventions that delay premature labor. They show that the potential savings of delaying premature labor are quite large, especially for extremely premature deliveries.

 

4.       Smoking and the sudden infant death syndrome. Mitchell EA, Milerad J. Rev Environ Health. 2006 Apr-Jun; The aims of this review are (a) to critically examine the epidemiologic evidence for a possible association between smoking and the sudden infant death syndrome (SIDS), (b) to review the pathology and postulated physiological mechanism(s) by which smoking might be causally related to SIDS, and (c) to provide recommendations for SIDS prevention in relation to tobacco smoking. Over 60 studies have examined the relation between maternal smoking during pregnancy and risk of SIDS. With regard to prone-sleep-position intervention programs, the pooled relative risk associated with maternal smoking was RR = 2.86 (95% CI = 2.77, 2.95) before and RR = 3.93 (95% CI = 3.78, 4.08) after. Epidemiologically, to distinguish the effect of active maternal smoking during pregnancy from involuntary tobacco smoking by the infants of smoking mothers is difficult. Clear evidence for environmental tobacco smoke exposure can be obtained by examining the risk of SIDS from paternal smoking when the mother is a non-smoker. Seven such studies have been carried out. The pooled unadjusted RR was 1.49 (95% CI = 1.25, 1.77). Consideration of the pathological and physiological effects of tobacco suggests that the predominant effect from maternal smoking comes from the in utero exposure of the fetus to tobacco smoke. Assuming a causal association between smoking and SIDS, about one-third of SIDS deaths might have been prevented if all fetuses had not been exposed to maternal smoking in utero.

 

5.      Female resistance to hypoxia: does it explain the sex difference in mortality rates? J Womens Health. 2006 Jul-Aug; Mage DT, Donner M. There is currently no accepted explanation in the medical literature for the lower female total mortality rate in infancy, childhood and adulthood. We review the pediatric mortality data provided by CDC and the World Health Organization (WHO) and show that for causes of respiratory infant death that are apparently independent of gender (e.g., suffocation from inhalation of food or other object), there is a consistently one-third lower rate of mortality in the female than in the male. This one-third lower mortality for causes of death with a respiratory terminal event is hypothesized to be due to an X-linked dominant allele that occurs with frequency 1/3. It appears as if a second X chromosome provides the one-third extra probability of protection afforded for an XX female compared with an XY male. It is suggested that the allele's function is unmasked during transient periods of cerebral anoxia, requiring a mechanism for anaerobic oxidation to prevent the death of respiratory control neurons in the brain stem. Examples of the female one-third extra chance of resistance to hypoxia are given for causes of death in infancy, such as infant respiratory distress syndrome (IRDS) and sudden infant death syndrome (SIDS), and for causes of suffocation in childhood and asphyxiation in adulthood. DNA testing of the X chromosome of probands from causes of respiratory death, such as SIDS and IRDS, where there is a one-third lower female than male death rate, is a future direction that can verify the existence of the proposed allele. For full-text: http://www.liebertonline.com/doi/abs/10.1089/jwh.2006.15.786

 

6.      The August issue of Clinical Psychology: Science and Practice includes presentation of a model of complicated grief, in the hope of facilitating research on the subject.  Dr. Paul A. Boelen, a psychologist and psychotherapist from Utrecht University in The Netherlands, predicts that complicated grief will be given diagnostic status in the next edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM). http://www.blackwell-synergy.com/doi/abs/10.1111/j.1468-2850.2006.00013.x

 

7.       Last week the U.S. senate approved a bipartisan bill (S 707) aimed at preventing premature births. Sponsored by Sen. Lamar Alexander (R-Tenn) and Sen. Chris Dodd (D-Conn), this legislation would expand and coordinate research through NIH and CDC on preventing preterm births and caring for preterm infants. It would also authorize grants for demonstration projects on treatments for prematurity, and would authorize additional funding for the Pregnancy Risk Assessment Monitoring System. Another outcome of the bill, should it become law: the creation of the Interagency Coordinating Council on Prematurity and Low-Birthweight, which would require HHS to report annually to Congress about their work on the issue. Similar legislation (HR 2861) was introduced in the U.S. House of Representatives in June, and is currently before the House Committee on Energy and Commerce for consideration. To view the bill just approved by the Senate, go to http://thomas.loc.gov/cgi-bin/bdquery/z?d109:s.00707: To view the similar bill under consideration in the House, go to http://thomas.loc.gov/cgi-bin/bdquery/z?d109:h.r.2861:.

 

8.       The National SIDS/Infant Death Resource Center (NSIDRC) is announcing the launch of the Electronic Resource Compendium on the NSIDRC Web site. Visit www.sidscenter.org <http://www.sidscenter.org/>  and click on 'Topics A-Z.' The Resource Compendium consists of a searchable database of information collected from national, state, and local SIDS/Infant Death programs, as well as perinatal, stillbirth, maternal and child health, and bereavement organizations. The compendium includes links to electronic versions of publications such as fact sheets, brochures, booklets, posters, order forms, and electronic materials in CD/DVD/video format (including foreign-language materials). If your organization would like to participate in this project, please go to www.sidscenter.org/biblio <http://www.sidscenter.org/biblio/>  to send links to electronic copies of publications for consideration.

 

9.       A sexual education and information web site developed by the Society Of Ob-Gyns of Canada has been recognized as one of top five projects in the world. The wed site www.sexualityandu.ca/ was honored by the World Summit Awards presented as a part of the United Nations Summit on the Information Society. The new web site was launched in 2001 in response to high rates of unplanned pregnancy and increased number of STDs in Canada. What Works: Curriculum-Based Programs that Prevent Teen Pregnancy Over the years, the National Campaign to Prevent Teen Pregnancy has produced a number of detailed reports designed to answer the following question: What curriculum-based programs work to prevent teen pregnancy? What Works, a new pamphlet available from the National Campaign, examines what is known about carefully evaluated interventions that help prevent teen pregnancy. To learn more go to http://www.teenpregnancy.org/Default.asp?bhcp=1

 

10.   NEW! From the National Center for Cultural Competence: Promoting Cultural Diversity and Cultural Competency: Self-Assessment Checklist for Personnel Providing Behavioral Health Services and Supports to Children, Youth and Their Families To review the assessment, go to http://www11.georgetown.edu/research/gucchd/nccc/

 

11.   Starting Off Right: Promoting Child Development from Birth in State Early Care and Education Initiatives describes a menu of strategies some states are using to improve early care and education for infants and toddlers, and supports to their families. In the period from birth to age 3, early experiences shape the architecture of the brain-including cognitive, linguistic, social, and emotional capacities-at a phenomenal rate. Early care and education is a key strategy states can use to promote positive development for very young children, including those in low-income families. And since a growing proportion of very young children spend extensive time in the care of someone other than a parent, state policies to promote the quality and continuity of those settings and relationships should be part of a strategy to assure children are ready for school. Despite compelling evidence of the importance of child development from birth, a clear state early care and education policy agenda that addresses infants and toddlers is still emerging. This paper provides illustrative state examples of specific policies to promote child development birth to 3, as well as ideas for state funding and governance structures that provide attention and resources for all children birth to age 5. To read this document, go to http://www.clasp.org/publications/startingoffright.htm

 

12.   The Environmental "Riskscape" and Social Inequality: Implications for Explaining Maternal and Child Health Disparities by Frosh & Shenassa. Environmental Health Perspectives Aug. 2006 The editors report that research indicates that the double jeopardy of exposure to environmental hazards combined with place-based stressors is associated with maternal and child health (MCH) disparities. They present evidence that individual-level and place-based psychosocial stressors may compromise host resistance such that environmental pollutants would have adverse health effects at relatively lower doses, thus partially explaining MCH disparities, particularly poor birth outcomes. The editors propose a conceptual framework for holistic approaches to future MCH research that elucidates the interplay of psychosocial stressors and environmental hazards in order to better explain drivers of MCH disparities.  Given the complexity of the link between environmental factors and MCH disparities, the editors strongly suggest that a holistic approach to future MCH research that seeks to untangle the double jeopardy of chronic stressors and environmental hazard exposures could help elucidate how the interplay of these factors shapes persistent racial and economic disparities in MCH. View article at http://www.ehponline.org/members/2006/8930/8930.html

 

13.   Barriers to following the supine sleep recommendation among mothers at four centers for the Women, Infants, and Children Program. Colson ER, et al  Pediatrics. 2006 Aug; The risk for sudden infant death syndrome in black infants is twice that of white infants, and their parents are less likely to place them in the supine position for sleep. We previously identified barriers for parents to follow recommendations for sleep position. Our objective with this study was to quantify these barriers, particularly among low-income, primarily black mothers. We conducted face-to-face interviews with 671 mothers, 64% of whom were black, who attended WIC Program Centers in Boston, Dallas, LA, , and New Haven. They looked at factors associated with choice of sleeping position  "ever" (meaning usually, sometimes, or last night) put infant in the prone (tummy) position for sleep and "usually" put infant in the supine (back) position to sleep. Results: 59% of mothers reported back, 25% side, 15% tummy, and 1% other as the usual position. 34% reported that they ever placed infants in the tummy position. Seventy-two percent said that a nurse, 53% a doctor, and 38% a female friend or relative provided source of advice. Only 42% reported that a nurse, 36% a doctor, and 15% a female friend or relative recommended the back position for sleep. When a female friend or relative recommended the prone position, mothers were more likely ever to place their infants in the prone position and less likely usually to choose supine compared with those who received no advice from friends or relatives. When a doctor or a nurse recommended a non-supine position, the mothers were less likely to choose supine compared with those who received no advice from a doctor or a nurse. Mothers who trusted the opinion of a doctor or a nurse about infant sleeping position were more likely to place their infants in the back position. Half of the mothers believed that infants were more likely to choke when supine, and they were less likely to place their infants supine. Mothers who believed that infants are more comfortable in the prone position (36%) were more likely to place their infants prone. 29% believed that having their infants sleep with an adult helps prevent SIDS and only 43% believed that SIDS is related to sleeping position. Conclusions: Researchers identified specific barriers to placing infants in the supine position for sleep (lack of or wrong advice, lack of trust in providers, knowledge and concerns about safety and comfort) in low-income, primarily black mothers that should be considered when designing interventions to get more infants onto their back for sleep.

 

14.   Stillbirth and bereavement: Guidelines for Stillbirth Investigation. J Obstet Gynaecol Can. 2006 Jun; Leduc L, et al. Objectives: To provide an investigation protocol to help health care providers determine the cause of a fetal death. Consideration has been given to protocols for the investigation of fetal death that are currently available in Canada and in other countries. Outcomes: Identification of possible causes of stillbirth and their relationship to future pregnancies. Evidence: Articles related to the etiology of fetal death were identified in a search of MEDLINE 1993 - 2004), the Cochrane Library, and investigation protocols from the ACOG, the Alberta Medical Association Committee on Reproductive Care, and the CDC and Prevention National Center for Health Statistics. Benefits: To provide better advice for women regarding possible causes of fetal death and implications for future pregnancies. Recommendations: A protocol should be used to investigate the possible cause of a fetal death. (II-B) Validation: The evidence obtained was reviewed and evaluated by the Maternal-Fetal Medicine Committee and the Society of OB/GYN of Canada.

 

15.   Perinatal Loss: A Family Perspective. J Perinat Neonatal Nurs. 2006 July/September; Callister LC. Perinatal loss is a profound experience for childbearing families. Examples of perinatal loss include miscarriage, ectopic pregnancy, stillbirth, neonatal death, and other losses. Perinatal loss engenders a unique kind of mourning since the child is so much a part of the parental identity. Societal expectations for mourning associated with perinatal loss are noticeably absent. Gender differences in response to such loss, as well as sibling and grandparent grief have been identified in the literature. Descriptive studies provide information on cultural responses to perinatal loss. Nursing interventions have been refined over the past two decades as research studies have been performed, in order to more fully promote health and healing in the face of perinatal loss. These include helping to create meaning through the sharing of the story of parental loss, the facilitation of sociocultural rituals associated with loss, the provision of tangible mementos, sensitive presence, and the validation of the loss. Outcome evaluations of such interventions are recommended.

 

 

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